Current:Home > reviewsMy son was feeling left behind. What kids with autistic siblings want you to know. -Keystone Capital Education
My son was feeling left behind. What kids with autistic siblings want you to know.
View
Date:2025-04-15 19:57:03
Today, on National Siblings Day and in the middle of Autism Acceptance Month, I'd like to bring our attention to a group of kids we mark as resilient, whose silent retreat, I fear, we may be mistaking for strength.
These kids, the amazing siblings to autistic children, are so full of understanding and grace, but that doesn't mean there isn't also pain.
Naturally a parent's attention goes to the child struggling most, and just as naturally, the sibling of a disabled child will fall into place to accommodate those same needs while receiving subtle messaging over time that there may not be a lot of space for their own.
"We tend to forget that siblings go through these feelings and stages of grief," Tara Reynolds, mom of two and a fierce autism advocate, shared with me on Monday evening.
Here's what our boys, both siblings to autistic children, had to share.
Brothers who still need mothers
Reynolds has a son close in age to my own. Henry, 13, has a 6-year-old autistic brother, Robby. It's just the two of them at home. Calvin, 12, is the second oldest of my four. My oldest, Lily, is autistic, diagnosed at 3 years old. Henry and Calvin are some of the most amazing humans this world will ever know. Tara and I agree on that.
"Not a lot of children experience that type of growth at this level before age 13," Reynolds shared, referring to how our children have had to watch their siblings struggle and make accommodations for them on their own.
"Henry never makes my husband, his brother or I feel guilty at all," she shared. "He always is so supportive of what Robby might need in order to have a good day."
Calvin, too, has worked hard to help his sister cope over the years. But as he's gotten older, he's been able to communicate that he doesn't want to be left to figure life out when I only have space to act as a buffer between Lily and her hard day.
Calvin has taught me that sometimes the greatest need isn't right before my eyes. Sometimes the greatest need lies deep within the kid who seems just fine.
We cannot forget them.
Hold me, too
I have held my son many times the past year as he's let out heavy cries. It's been harder for him to keep big feelings inside post-divorce as he's been given more tools to process hard things. As he's processed some of the bigger things, topics like this have been easier for him to address.
We sat down this week to talk about what he may want to say about growing up alongside Lily.
"You just have to focus on her a lot," he shared with me. "Like, if she's stimming when I'm trying to show you something, you have to focus on that first," Calvin said.
I asked him the biggest positive to his experience growing up with an autistic sibling, to which he said, "Well, you learn how (autistic people) feel."
"But do you feel there needs to be more care around how you feel?" I asked him.
"Well, yeah," he shared, "But I just hope that families like ours won't give more care to kids like me over their autistic children because they feel their lives aren't worth it."
And that is just like Calvin to say.
To parents of a newly-diagnosed child:One day you will bake a cake
'I try to find the joy in the little things'
Before Henry's autistic brother, Robby, was born, he was an only child for seven years, Reynolds shared with me.
"We did all the typical things that now seem like a lifetime ago," she said. As Robby began to grow, he began to elope, and he has "sensory aversions to some environments," Reynolds said. "It’s such a small thing, but when all of those missed restaurant family dinners, Target runs and sleepovers add up, I feel like I’m not giving Henry everything he deserves in a childhood."
Henry has learned, just as Calvin has, that his sibling's needs "might come first the majority of the time."
"And even though we try so hard for him not to feel like his aren’t as important, it can definitely feel like that to him sometimes," Reynolds shared.
"Henry has seen his brother struggle during meltdowns or difficult situations that his body can’t control," Reynolds said. "Processing those feelings isn’t easy on anyone, let alone a young child who has had to do this for years."
Henry, just like Calvin, has seen some tough days, but he, just like Calvin, has seen a beautiful relationship unfold between he and his autistic sibling over the years.
Henry had a few words of his own to share for National Siblings Day.
"I try to find the joy in the little things with Rob," he shared. "Like playing outside, jumping on the trampoline or swimming, because seeing his smile lights up my day."
As for the hardest part, Henry longs to know his brother in a deeper way. "He knows how much it makes me happy that he's happy. He shows me in his own way, but I wish I could talk to him," he said.
Fostering connection
"I just want you to pay attention to me," Calvin told me at the end of our conversation Monday. And I think, if anything, this is what us parents need to hear.
When I weed through my day-to-day moments, I feel that I am a present mom, and he agrees, but also stresses that his pain comes from the moments when he is reaching, and I cannot choose him, because in that moment, I am acting as that buffer between Lily and her hard day.
Because Calvin is patient, because he is gracious, because he is understanding and kind, I did not see his retreat when it happened, not until the kitchen conversations about his day dwindled down to nothing and the "mom, want to watch a show together?" stopped.
His limbs may not be flailing. His voice may not be wailing. He may not seem visibly distressed.
But he needs me to come to his rescue.
And so I do now. Every night. I've created a little more space to reach back – no matter what noises are coming from upstairs.
You can follow Tara Reynold's family's journey here and her online store promoting messages of acceptance here. You can follow my family's journey here.
veryGood! (26276)
Related
- Megan Fox's ex Brian Austin Green tells Machine Gun Kelly to 'grow up'
- Justin Thomas, Jordan Spieth among PGA Tour stars who miss cut at Players Championship
- 11-foot, 750-pound blind alligator seized from Hamburg, NY, home, gator used as attraction
- Prosecutors say New York subway shooting may have been self defense
- Appeals court scraps Nasdaq boardroom diversity rules in latest DEI setback
- College Football Playoffs new six-year contract starting in 2026 opens door to expansion
- Is Jason Momoa Irish? 'Aquaman' actor stars in Guinness ad ahead of St. Patrick's Day
- Cara Delevingne's Parents Reveal Cause of Her Devastating Los Angeles House Fire
- Taylor Swift Eras Archive site launches on singer's 35th birthday. What is it?
- When it’s St. Patrick’s Day in New Orleans, get ready to catch a cabbage
Ranking
- FACT FOCUS: Inspector general’s Jan. 6 report misrepresented as proof of FBI setup
- Judge mulls third contempt case against Arizona for failing to improve prison health care
- Aaron Donald announces his retirement after a standout 10-year career with the Rams
- Aaron Donald, Rams great and three-time NFL Defensive Player of Year, retires at 32
- IRS recovers $4.7 billion in back taxes and braces for cuts with Trump and GOP in power
- Eva Mendes Thanks Ryan Gosling For “Holding Down the Fort” While She Conquers Milan Fashion Week
- Paul Simon, graceful poet and musical genius, gets his documentary due 'In Restless Dreams'
- Prosecutors seek from 40 to 50 years in prison for Sam Bankman-Fried for cryptocurrency fraud
Recommendation
Trump's 'stop
Judge asked to dismiss claims against police over killing of mentally ill woman armed with shotgun
Shakira Says She Put Her Career on Hold for Ex Gerard Piqué Before Breakup
School shooter’s parents could face years in prison after groundbreaking Michigan trials
New Zealand official reverses visa refusal for US conservative influencer Candace Owens
A fourth Albuquerque, New Mexico, police officer has resigned amid probe of unit
MLS Matchday 5: Columbus Crew face surprising New York Red Bulls. Lionel Messi out again for Inter Miami.
Man, woman arrested in connection to dead baby found in Florida trash bin